J. is my son, an autistic adult with additional learning difficulties and
epilepsy who is dependent on me to stay safe and meet his needs.
He has been living with myself and his mum at the family home since March
2020. As well as being a trained autism educator, I believe
myself to be on the edge of the autistic spectrum. Does my being an
'Aspie' give me special insight into my son's needs? That's one of
the questions I want to explore as part of this project.
me answer this question, I intend to develop the delivery of J's care at home by assessing his needs
and creating a written care
package, which I will then evaluate at regular intervals. Which
leads me on to a further question.
One day, at sometime in the future, my son will enter residential
care. How can my assessment and care plans and evaluations
contribute to his care in such a setting? I propose
that annotating the written care package with homemade 'video care plans'
will support my son's care in a residential care setting.
An action research approach will inform this study with the aim
of promoting family advocacy in adult autism residential care. A
research journal will provide a platform to reflect upon this and
related issues such as how autism expertise contributes to improved
care outcomes in adults with autism;
social care policy; neurodiversity; and
critiques of autism care within critical autism studies.
References & indicative bibliography
Davidson, J. and
Orsini, M. eds., 2013. Worlds of autism: Across the spectrum of
neurological difference. U of Minnesota Press.
Fletcher-Watson, S. &
Happé, F., 2019. Autism: A new introduction to psychological
theory and current debate. Routledge.
Glasby, J., 2017.
Understanding health and social care: third revised edition.
Lloyd, M., 2010. A
Practical Guide to Care Planning in Health and Social Care. Open
McNiff, J., 2016.
You and your action research project. Routledge.
Osgood, T., 2019.
Supporting Positive Behaviour in Intellectual Disabilities and
Autism: Practical Strategies for Addressing Challenging Behaviour.
Jessica Kingsley Publishers.
Silberman, S., 2015.
Neurotribes: The legacy of autism and the future of
Stoller, B. M. (2019)
Filmmaking For Dummies, 3rd Edition (For Dummies)
Wolff, S., 2020.
Loners: The life path of unusual children. Routledge.
Zinsser, W., 2006.
On writing well: The classic guide to writing nonfiction. Harper